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These updates provide information about the most recent progress made with the Aiming High for Disabled Children (AHDC) programme. Items are listed in date order, with the most recent first.

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Programme headlines

Consultation on a National Framework for Assessing Children's Continuing Care published
The consultation on a National Framework for Assessing Children's Continuing Care has been published. The framework is intended to help Primary Care Trusts (PCTs) apply a consistent and transparent approach to assessing the healthcare needs of children and young people, and to work jointly with local authorities (LAs) to provide services in the light of those needs. This framework will apply to children and young people under the age of 18 years who have complex health needs because of disability, accident or illness.

Deadline for responses is December 31 2008.

National Indicator - survey methodology published
The Aiming High report, May 2007, made a commitment to introduce an indicator on the provision of services for disabled children. DCSF commissioned the National Centre for Social Research (NatCen) to help develop the methodology of the survey that will underpin the disabled children's services national indicator (NI 54). The NatCen report which makes recommendations on the form and methodology for measuring the indicator has now been published. The next stage of the process will be tendering for a contractor to carry out the survey. It is expected that the indicator will be measured for the first time at a local level in 2009-10.

Parent Participation Grants Programme Launched
As part of the Aiming High for Disabled Children (AHDC) programme the Government committed £5 million to support parent involvement over the next three years. The Parent Participation Grants Programme has now been launched by the Department for Children, Schools and Families. Over the first two years of the programme (2008 to 2010), £3 million will be available through a programme of grants and support from Together for Disabled Children to develop parent participation activities in each local authority area across England. For further information visit the Together for Disabled Children website.

Childcare Pilot Launch
On Friday, 5 September 2008, the Childcare Division hosted the first meeting of the National Learning Set for the Disabled Children's Access to Childcare (DCATCH) programme. Nine of the local authorities from the first wave of pilots attended. Introductory presentations from the Childcare and Special Educational Needs and Disability (SEND) Division, and group discussions around proposed 'success criteria' for the pilots took place on the day. For more information on the childcare pilots visit the AHDC childcare pages.

AHDC: Short Breaks Implementation Guidance
The Department for Children Schools and Families and Department of Health have issued joint AHDC short breaks implementation guidance for Primary Care Trusts (PCTs) and local authorities. The guidance informs the transformation of short-break provision over the next three years and should be read in conjunction with other AHDC resources. PCTs should also consider this guidance in shaping their response to the 2008-09 NHS Operating Framework priorities. For further information, please read the cover letter regarding associated funding announcements.

AHDC: Transforming Services Conference Materials
These materials, from the conference held on 15 May 2008, include a conference report, PowerPoint presentations, the speech by Ed Balls MP, Secretary of State for Children, Schools and Families, and the DCSF press release.

National Support Body Announced
Ed Balls MP, Secretary of State for Children, Schools and Families, recently announced Together for Disabled Children as the national support body for the Aiming High for Disabled Children programme. Together for Disabled Children is a coalition between Serco and Contact a Family. The body will support local authorities and PCTs in transforming their short break provision for disabled children and their families and in securing excellent parental engagement in disabled children's service design and delivery through parent forums and other forms of participation.

Transforming Services Conference
At a major national conference in London on 15 May 2008, Ed Balls MP, Secretary of State for Children, Schools and Families, made a series of important announcements on the delivery of the Aiming High for Disabled Children programme. For further information, read the DCSF press release and the Secretary of State's speech.

Joint APPG Meeting
On Tuesday 6 May 2008, DCSF Minister Andrew Adonis addressed a parliamentary meeting led by the All Party Parliamentary Group on Children to give an update on progress towards implementing the Aiming High for Disabled Children programme. For further information, read the speech on the DCSF website.

Extending Inclusion
The Council for Disabled Children has published Extending Inclusion, a good practice guide designed to support managers, staff and their partners working to improve access to children's centres and extended schools for disabled children and young people. This project was funded by DCSF.

Individual Budget Pilots Scoping Study
The DCSF has commissioned a scoping study prior to the piloting of Individual Budgets for families with disabled children. If you would like to participate in the study, please contact Carol Lynagh or Meera Prabhakar.

Bercow Review Publishes Interim Report
The interim report from the Bercow review, the review of speech, language and communication services being led by John Bercow MP, has been published. The interim report highlights key themes for further consideration by the review. The final report, with recommendations to government, will be published in July 2008.

Transition: moving on well
The Department of Health has published Transition: moving on well, good practice guidance for health professionals and their partners on transition planning for young people with neurodisabilities moving into adulthood.

New Strategy for Children's Palliative Care
The Department of Health has launched a new strategy for children's palliative care services, backed with a £20 million grant from 2009-11 for hospices and hospice-at-home care.

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This page was last updated on 08 October 2008

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